Celine Dion speaks, through tears, about her rare neurological disease: “I’m just hoping for a miracle”

At 56 years old, the great music star has had to change the stage for hospitals. Diagnosed with Stiff Person Syndrome, Celine Dion fights daily against this rare neurological disease that causes involuntary contraction of muscles and affects all of her daily activities, including singing. The artist, one of the most awarded in the history of music, has spoken about her process in a documentary that will premiere next June 25 on Prime Video: “Before I wasn’t ready to say anything… But now I am.”

Visibly deteriorating, Dion recounts her particular hell: “Every day I work hard, but I admit that it is costing me. If I can’t run, I walk. If I don’t walk either, I crawl. But I don’t give up. “I’m not going to give up,” confesses through tears. The interpreter of My heart will go onthe central song from Titanic for which he won an Oscar, confesses that he misses his audience a lot: “Concerts are not difficult, the difficult thing is canceling them.”

An effective treatment for this condition is unknown because, as it is a rare disease, it receives very little funding for its study and research. Celine, however, does not lose hope: “The disease will always live with me and I have to learn to live like this, but I hope for a miracle, a way to cure it with scientific research.” For the moment, the Canadian is focused “body and soul” on her improvement and to do so she relies on the strength that her family and her passion for music inspire: “I will love to sing until I die.”

Celine Dion began her musical career in 1990 and since then she has won 5 Grammy Awards, 12 World Music Awards, 2 Oscars, 2 Golden Globe Awards, 7 Billboard Music Awards, 6 American Music Awards, 20 Juno Awards and 50 Felix Awards, among many. others. Additionally, she has received two Honorary Doctorates in Music from Berklee College of Music and Université Laval. But for the artist, the greatest triumph of her life was her family: she is the mother of three children, René-Charles, Eddy and Nelsonall the result of her marriage to the man who had been her discoverer and manager René Angélilwho died of cancer in January 2016.