Santiago de Compostela, Palace of Congresses of Galicia. Lady Letizia presides over the Commemoration of the World Day for Rare Diseases. The Queen, personally linked to the FEDER, thus makes the campaign visible Make time go our way. The official act took place in the Galician capital this Thursday morning, March 16. Upon her arrival at the auditorium, the wife of Philip VI He waved and those present stood up.
The choice of the Galician capital to host this act of the Spanish Federation for Rare Diseases responds to the symbol of pilgrimage. Santiago, as the cradle of pilgrims, is the destination and goal of many lives and many stories. In the words of the FEDER, the city of Compostela “represents the path of the diagnostic odyssey” of many patients. Up to four years of average wait to get a diagnosis.
The Queen is accompanied by the Minister of Health, Carolina Darias, the president of la Xunta, Alfonso Rueda, y Juan Carrion, president of the federation the journalist Raquel Dominguez has acted as master of ceremonies in this event in which the FEDER 2023 Recognitions are also delivered, which distinguish projects and initiatives that help improve access to the diagnosis of rare diseases, make equity in diagnosis visible, as well as treatment .
On a day of making efforts visible and acknowledging, the Queen has released a shirt dress, with a matching belt and a shirt collar. A showy piece in raspberry pink: the Viva Magenta color that Pantene has dictated for 2023. It will be the brightest shade we will wear this year.