Doña Letizia, on Rare Disease Day: “In 25 years, I will be 76. I hope you can count on me too”

Appointment in Seville. The Queen Letizia has traveled to the Andalusian capital, which hosts the central event for Rare Disease Day. An event promoted by the Spanish federation, which also celebrates its 25th anniversary. It was this Tuesday, March 5 at the Palace of Congresses and Exhibitions in Seville. He has accompanied the Queen with the Minister of Health, Mónica García.

Mrs. Letizia has been committed to the FEDER for 15 years. On this occasion, the Queen has joined the event under the motto In rare diseases, is prevention better than cure?which had Seville as its setting, the same city where the organization was founded in 1999.

The director and president of the federation, Isabel Motero and Juan Carrión, opened the event, who very excitedly showed his gratitude to the Queen: “Thank you because you make us never feel alone (…) Your Majesty, with your help you have changed our lives.” The mayor of Seville, José Luis Sanz, also spoke, and had a special nod to the group Siempre Así, “for supporting solidarity causes”; and the Andalusian president, Juanma Moreno.

Doña Letizia delivers the speech without reading

The Queen spoke and highlighted “the 25 years of tireless work” of the federation, “rowing in the same direction to obtain all support, economic, scientific and social.” In her intervention, from memory and without reading, she highlighted the efforts of the associative community: “Your strength, your generosity, patience and intelligence.” And she concluded with a mention of the anniversary: “In 25 years, I will be 76. I hope you can count on me too.”

Letizia has chosen a wardrobe recycling dress. An ink blue knit design, with French sleeves, signed by Galcon. The absolute prominence of this look goes to the flowers. Two carnations in XL format that add that point of light to the whole.

The FEDER organization looks to three pillars of this campaign in 2024: research, early diagnosis and access to treatments and therapies. According to FEDER sources, 6,313 rare diseases have been identified in Europe, although it is estimated that there may be more than 7,000, the majority of genetic and pediatric origin.